Resources for parents
Getting the information and support you need when you are caring for a child with a severe disability or illness is often overwhelming.
We're here to help. Below are a number of great resources that can help you understand how to apply for benefits, navigate the healthcare system, get legal support or simply get a diagnosis.
A platform that provides advocacy and support for families with children with special needs, offering resources and assistance in navigating various systems and services.
The Circle of Care Guidebook for Caregivers of Children with Rare or Serious Illnesses is a comprehensive resource to help parents navigate the experiences and challenges of rare and serious medical conditions.
A national network of families of children with special health care needs that provides information, resources, and support.
A network that connects parents of children with disabilities or special health care needs with trained and experienced parent mentors for support and guidance.
A library of resources for rare disease patients and their families.
.png)
A national law and policy center focused on civil rights for people with disabilities, offering legal assistance and resources for parents.
A global rare disease patient advocacy organization, providing resources, tools, and connections for patients and families.
A national organization of attorneys committed to helping individuals with disabilities, their families, and the professionals who serve them.
A website that provides information about special education law and advocacy for children with disabilities, including articles, cases, and resources.