Resources for parents
Getting the information and support you need when you are caring for a child with a severe disability or illness is often overwhelming.
We're here to help. Below are a number of great resources that can help you understand how to apply for benefits, navigate the healthcare system, get legal support or simply get a diagnosis.
A platform that provides advocacy and support for families with children with special needs, offering resources and assistance in navigating various systems and services.
A national network of families of children with special health care needs that provides information, resources, and support.
A network that connects parents of children with disabilities or special health care needs with trained and experienced parent mentors for support and guidance.
A library of resources for rare disease patients and their families.
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A national law and policy center focused on civil rights for people with disabilities, offering legal assistance and resources for parents.
A global rare disease patient advocacy organization, providing resources, tools, and connections for patients and families.
A national organization of attorneys committed to helping individuals with disabilities, their families, and the professionals who serve them.
A website that provides information about special education law and advocacy for children with disabilities, including articles, cases, and resources.